International Registry Study on Autosomal Recessive Polycystic Kidney Disease


In this project the ESCAPE Network and the German Pediatric Nephrology Association (GPN) have joined forces with renowned translational researchers interested in ARPKD to:

  • advance the pathophysiological understanding,
  • provide an observational evidence base for unified clinical management concepts,
  • establish clinical and biomarkers predicting the risk of early and progressive disease,
  • lay the foundation for innovative translational research toward novel therapeutic targets, and
  • pave the way for clinical trials in children with ARPKD.
Design:Pro- and retrospective observational study
Patients enrolled:574 as of 03/2019, enrolment ongoing
Coordinating Center:Department of Pediatrics, University Hospital of Cologne
Participating Centers:Click here
Contact Information:

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Active ESCAPE Participants: